Rare Disease Task Force

Rare diseases are life-threatening or chronically debilitating diseases which are of such low prevalence that special combined efforts are needed to address them. As a guide, the European Commission uses the prevalence of less than 5 per 10,000 persons in Europe to describe a diseases with a low prevelance.

Short name and number: 
NULL
Name of US Partner: 
NULL
Contact: 

Juliette BLOCH RDTF Scientific Secretariat France j.bloch@invs.sante.fr

Participating Countries: 
United Kingdom
Area: 

Health

Category: 

Thematic task force/working group in EU